TCOYD Research Registry
Welcome to the TCOYD Research Registry
Below you will find a complete description of the Registry, its purpose, and what will happen if you decide to become a member. At the end, you can click a button to sign up.
What is the TCOYD Research Registry? Dr. Edelman and the staff at Taking Control of Your Diabetes (TCOYD) are collaborating with the Behavioral Diabetes Institute (BDI) to spread the word about important diabetes research studies going on right now. These studies are designed to lead to a better understanding of problems experienced by people with diabetes and their families. TCOYD and BDI want to know if you wish to learn about these new research studies when they are ready to begin. At that time, you can decide if you wish to participate in them.
How do I participate? If you would like to participate, you will be asked to complete a very brief survey on the next page so that in the future we can invite you to participate in new projects that might be right for you. By submitting your information, you will allow professional staff of TCOYD and BDI to share information about new studies with you in the future and to ask if you might wish to participate. You have no obligation to actually participate in any study.
Please note that you must be 18 years or older to participate. Your participation will help us to learn more about diabetes.
What happens if I don’t agree to be in the registry? Declining to participate will have no influence on your present or future status with respect to TCOYD. You will receive the same information about TCOYD educational and informational programs as any other individual with access to their website.
Are there any risks to my agreeing to be in the registry? Participation in the registry may involve some loss of privacy. However, your information will be handled as confidentially as possible. Access to your information will be limited to the research registry manager and those who operate the registry. The information will be stored on a secure, HIPAA-protected server. No information will be used for any purpose without your permission, and registry information will not be shared with anyone outside TCOYD or BDI.
Are there any financial considerations? There will be no cost or payment to you for just being in the registry. However, the research studies you elect to participate in may provide a financial payment to you.
What do I do if I have questions, now or later? You can talk with the research registry manager about any questions, concerns or complaints you have about the registry. Contact the registry manager, Brittany Carney, at 800.998.2693 or brittany@tcoyd.org
If you have questions about your rights as a research subject, to offer input, or to talk to someone other than registry staff, you can contact E&I Review Services (E&I), the review board that reviewed this project for subject rights, at 800-472-3241 (toll free) or by email at subject@eandireview.com.
